27 Feb 2013

I began the Methimazole in September of 2012. The first week was bad. Ups and downs and really bad headaches but then the headaches stopped and my energy level returned and things seemed to level out. My second lab that was drawn showed normal levels - then into the fourth month I began having that racing feeling with my heart and was so tired and had the shakes again and could barely stay awake and when I did sleep I never felt rested. My immediate thought was , this medication needs to be decrease and lo and behold I was right. The last labs drawn on Feb 14, 2013 showed the levels to be low ...so my DOC decreased the Methimazole to 10 mg per day half in the morning, half at night and within two days I began getting ready bad headaches. I was told this would happen until is all levels out again and my energy returns. I just do not know what to think, I hate medication and have not been sick in 22 years. When my blood pressure was out of control this past September it was my first ER visit in years and they are yelling HEART and I am saying NO THYROID ... do I know my own body or what? Endo wanted to yank ti out or do RA Iodine and I said " When pigs fly" My DOC is so great and he said "Look I know you are Holistic and do not like drugs but please try the Methimazole and if it does not agree with you I will take you off it " I trust my DOC so I took it for the four plus months. It's only been two days since the decrease and the headache from hell is what i have. Can anyone please explain that to me?

—Posted by Anonymous

13 Nov 2012

I am on my second week of taking these meds. Its worked great so far and hoping it continues to improve. I've been dealing with the symptoms (muscle/weight loss, shakes, memory loss - at night body is basically paralyzed from neck down) for about 3-4 months. I don't know what the normal symptoms are, and I've read that some have dealt with it for awhile. If it is anything like what I had, I do hope you find relief soon. The quality of life this has given back to me thus far is incredible. I haven't noticed any side effects so far, however it has only been 2 weeks. I read some deal with insomnia, I've had insomnia issues as far back as I can remember so not sure it changes anything for me. Bottom line for me is that it lets me hold my wife and play with my kids again.

—Posted by Cas A

07 Sep 2012

My major problem with Methimazole, which I have taken for the past 6 months, is severe insomnia which makes me so very exhausted during the day. I have never been a very good sleeper, but this is ridiculous! I have also lost half of my hair. I am having blood work next week and a follow-up with my endocrinologist a week later and hope to get some answers. To be fair, this drug has made my thyroid numbers fall in to the normal range.

—Posted by Tired Lady